The Ocean & Us Ep9.1: Making Conservation Work for Whales

Dear Friends,

Well, at long last, we have a new episode to share! It has been such a scattered year, and we are still learning how to manage our complex schedules. Tara will say it is her fault, but it is more like she is so overextended! I am just so grateful that she can help me with this and so many other things.

So, I am very happy to introduce this episode featuring Jo Marie Acebes (Jom), a friend and impressive conservation researcher from the Philippines! We will share this interview in three parts. Today is part 1!

I so enjoyed chatting with Jom and learning more about her work, and I hope you enjoy watching! Video and transcript below.

Your Friend,

Danny

Learn more about Jom’s work at Balyena.org:

https://www.facebook.com/balyena.org.ph

http://balyena.org.ph/main.php

Learn more about the marine animal plushies:

https://www.facebook.com/CSVsewmates/

Transcript

Introduction

Tara: Alright, ready to start?

Danny: So ready!

D: Awesome, exclamation point, done and done!

T: It’s been a while since we’ve, uh, done one of these, huh?

D: Too long!

T: So… for those who haven’t seen any of Danny’s recent videos for other projects, what he’s saying at the end there is “Awesome, exclamation point, done and done!”  It’s just a thing he’ll commonly do at the end of spelling a sentence, especially when it ends in an exclamation point!

So, what do you want to say to everybody?

D: Hi my Ocean Friends!

T: Yes, I echo that. What do you want to say?

D: We missed you!

T: We did miss you.

D: We missed you and we are excited to share new episodes with you!

T: Yes, we are excited to share new episodes with you.

So it has been a while – maybe almost a year – since our last episode because time is a fickle beast. I was really busy with work last year, and Danny has some other projects, and we’re also constantly working on Danny developing skills that he needs to be more autonomous in his communication and his life. All of that takes a lot of time and energy. We are finally at a place where we are able to come up – interview, edit, post – more episodes to share with our The Ocean and Us family.

D: I can’t believe it has been so long!

T: Yeah, I can’t believe it either. I guess we did post your SpellX video later last year, but in terms of real podcast episodes, it’s been close to a year. Yeah, I can’t believe it. But here we are! So, do you want to tell our friends about this episode?

D: You should!

T: I should? Ok. So, we were really excited to have our first in-person interview with my friend – our friend – Jom or Jo Marie Acebes, because she was visiting San Diego for a conference. She’s actually from the Philippines and works in the Philippines. She’s a Senior Museum Research in the Zoology Division of the Natural History Museum of the Philippines, which is a relatively new position, it’s a relatively new museum, so that’s exciting. And she’s the founder and principal investigator of Balyena.org, which is a non-profit working on whale and dolphin [and other large animals!] research and conservation in the Philippines. They have some really great social media posts that are really informative and engaging, so I recommend checking them out – we’ll post some links.

Not only does she have a PhD, but she also has a doctorate in veterinary medicine. And, beyond even those two, her research has also taken an interest in looking at the human side of conservation, and that’s something she and I have spoken about a lot as well.

So we were really happy to have her staying with us while she was in town in December – yes, we are very behind on filming this introduction and editing, it’s already the 2nd half of March. I will say that we have a new webcam now that has higher resolution. The one we used for her interview, unfortunately, was not up to our low light settings, so the resolution is not particularly good. But we hope you can look past that and see the scintillating nature of the conversation we had with her!

How’s that for an introduction?

D: Perfect!

T: Anything else you want to say?

D: We will be posting this in multiple installments!

T: Yeah, so these conversations we have on this podcast are so interesting, they could go on for a long time. We recognize that it’s hard to focus – especially if it’s not a podcast per se but there’s a video involved, it’s hard to focus for very long as an audience member. So even though the conversation itself was about an hour, we’ll be posting it in – we haven’t decided how many installments, maybe 3 installments – more digestible episode parts, so to speak. And so we hope that makes it easier to follow along.

D: I really loved chatting with Jom!

T: Yeah, you did really love chatting with Jom.

D: And learning more about her work!

T: Yeah, even as someone who’s her friend but also her professional colleague, I really enjoyed learning more about her work as well. And you two definitely had a really nice rapport, a really nice flow together.

D: So how about starting the episode now?

T: I think that’s an excellent idea, Danny. We hope you enjoy.

D: Bye!

Interview

T: This is our first in-person interview

J: Oh really?

D: Hi Jom!

J: Hello, good morning!

D: Do you like my hat?

J: Oh yes! Sperm whale! That’s really cool. Where did you get it?

T: Shay gave it for him as a birthday present this year. He loves it. But yeah, you requested to wear it, I suspect for you [Jom]

D: I know it is not a humpback whale, but close enough!

J: Yes, it’s still a whale!

T: I’m glad we can do this. I know scheduling over email, things can get really busy, but now we have you trapped in our house! I’m gonna let you lead this conversation, bud.

D: It is so nice to meet you and have a chance to learn about your work!

J: Thank you. It’s so nice to finally meet you in person!

D: So tell me all about Balyena.org!

J: Thank you, and you got it correct the first time – most people just say Balyena, but Balyena.org, yes, that’s the name.

[Bathroom break]

J: So, Balyena.org, I only got the idea to start it after I quit WWF-Philippines – I used to work with WWF, and at that time I was already working on humpback whales in the Babuyan Islands in the northern Philippines.

I decided, because WWF didn’t want to continue the project anymore, and I thought we put in a lot of work on it and I really wanted to continue it, so I thought why not just do it on my own with some of my friends, former volunteers, former colleagues. So, informally, I thought okay, we’ll start it informally, we’ll find our own funding, write small grants, and continue the work, and eventually we thought it’s better to register it as an organization.

So our first project was the humpback whale project, continuing the work we were doing in the past. Eventually, we thought of expanding it, working on other things like blue whales and then helping with strandings.

T: I actually didn’t know any of that!

D: Wow, I love that you just started it on your own!

J: Thank you. It wasn’t easy, but I wasn’t really just by myself – I had friends to help me. That was very, very important. Without them and the volunteers, it wouldn’t have happened.

T: Yeah, that is important. That’s something I really learned with the team in Myanmar. In the Philippines, you have a lot more people doing work on marine mammals, on marine conservation, but still there’s a lot left to be done, and there’s a lot of room in the region for people with good ideas, if they can get something started, to do something new and needed.

D: Totally! So tell me about those whales!

J: So the humpback whales that visit the Philippines every year, they are part of the Western North Pacific population. So they are the same whales that you find here. But the Philippines, and Okinawa and Ogasuwara in Japan, they are considered breeding grounds for a specific, small, distinct group of this Western North Pacific. So, of the Western North Pacific population, you have small subpopulations, so the ones that breed in the Philippines and Japan are distinct genetically. And they go to feed in Alaska and Russia.

And then every year they do that migration – feeding grounds in the summer, breeding grounds in the winter, so they spend their winters in warmer countries like the Philippines.

T: They’re smart!

J: Yes!

D: So cool! How do you study them?

J: So we do photo-ID – that’s the main method – we take photographs of their flukes, the tail. So the whale, when they dive, they raise their tail or their fluke. A humpback whale, each fluke has a unique pattern of black and white. Also, the serrations are very unique. Let me get a photo here so I can show it.

So we take a photo of their flukes, so each whale will have a unique photograph, so we can identify. So we know which whale is coming back, and where they are, and who they are with.

And then so we take photos of every humpback whale that we see and then so every time we see a humpback whale, we take a photo of the fluke, mark the location with a GPS, and then we match it. We have like a photo album of all the fluke photos of the humpbacks that we know come to the Philippines. We look at them and match to find out if we’ve seen that whale before or not.

And then, at the end of the season, we compare that with other researchers in Japan and also in feeding grounds in Russia and Alaska. So we know if our whale went there and which year or which season they were seen.

And if it’s a female, it’s even more important, because we will be able to tell if it’s had a baby or not, and how many times it’s had a baby.

D: So fascinating!

J: Here is a photo: see, it’s unique, this one is a different whale, it’s named Johnny Moon, and that’s Chandria.

D: I had no idea! Who gets to name them?

J: Normally, as researchers, I like to name them just by the numbers, so very boring. For us, just to remember it’s from the Philippines, we go PH001, and then chronologically.

But the example I showed you is from our Adopt A Whale program, so people can virtually adopt a whale, and they can name them if they don’t have a name yet. So those guys who adopted that decided to name them Johnny Moon and Chandia.

D: Is that through Balyena.org?

J: Yes, that’s part of our fundraising!

D: So creative!

J: Thank you!

D: How do you fund this work besides that?

J: Very good question. I have to write grant proposals every year. Most of our funding comes from international organizations that give out funding. So Adopt a Whale is just a very very recent program that we started. We also sell some merchandise. And the other recent fundraising project is that we’re selling this field guide on whales and dolphins in the Philippines to help fund our research. But yeah, I have to write research grants every year, multiple times a year. So no assurance that we get funding, sadly.

T: And Jom also works for the Natural History Museum in Manila, as well.

J: I have to stay in a regular day job to survive!

D: Tough!

T: Do you still do the felt animals – what are they called?

J: Plushies. Yes, we still do them. I don’t have the Plushies with me because we had to transfer to another volunteer and she’s in charge of trying to sell them. Locally-sewn whale toys or plushies by the women who live in the islands where we work.

T: It’s a cool program. I met Zerlina – she’s from Hong Kong – and she makes these patterns and they do all sorts of different species. I think they have an Irrawaddy dolphin?

J: Yeah, Irrawaddy, narwhal… she’s done every marine mammal, I think, oh maybe not the too unfamiliar ones, like vaquita I’m sure she hasn’t done.

T: That’s a very niche one!

J: But she’s done blue whales, sperm whales, killer whales

T: It’s just cool that women in coastal communities can learn how to do them and people who like those animals can have these nice Plushies while supporting conservation. I like that a lot. It’s a really cool program.

D: So cool and I want to buy some one day!

J: That would be really nice. You can choose – for the Adopt a Whale, we have 16 whales up for adoption. It was hard to choose, because you have to choose the really nice-looking fluke ones, the really interesting ones. Because part of the Adopt A Whale, you get a certificate of adoption, a fluke photo, a plushie, a sticker, and a postcard, and you get updates about your whale quarterly. We tell you if we saw the whale, who it was with, and all those things.

T: So, at marine mammal conferences – I didn’t grow up as “oh, I love dolphins and whales!” – so there’s a lot of cheesy stuff that gets sold. But Balyena.org, they actually have really nice, tasteful things, like their T-shirts have really cool designs. They have good taste.

D: That is so important!

J: Thank you.

[TO BE CONTINUED NEXT WEEK!]

My Birthday Message

Dear Friends,

Wow, I am 37 today! I decided to re-post the poem I wrote for my birthday last year. I am still so just beginning my life with communication, and this is only my third birthday since having Spelling access in my daily life. Each milestone brings joy, pride, and also gratitude, but also regrets over time lost before I could communicate. I am steadily learning to manage and grow through the regrets. I am so glad I can use my words to help other nonspeaking folks and their loved ones.

I will spend the day with my loved ones, and I am so cherishing the moments we can more deeply share now that I can communicate! The years do indeed seem so bright from here.

Your Friend,

Danny


Dear friends of Danny With Words,

Danny suggested that I add my own message to mark his birthday! I am so lucky to have known Danny – my precious little brother! – for 37 years, and I am so grateful that I have been able to support his communication journey over the past couple of years. As his family, we also feel sharp pangs of regret and guilt over time lost before we were able to support communication in his daily life. I use that regret to motivate our drive forward, and to appreciate the life-changing experience of getting to know my brother through his own words. I still can’t quite grasp the marvelous fact that his words now reach hundreds of people regularly!

He is truly my closest ally and soulmate, just the coolest, most wonderful, most thoughtful and caring and funny person ever, and we are already having a fantastic weekend of celebrations! Please join me in wishing Danny a happy, happy birthday!

Your Friend via Danny,

Tara


Years

By Danny Whitty

So all my all my all my

Time in this form

Spent in mostly

Trapped

Purgatory and only now

Am I arrived

And years seem so

Bright from here.

Back to Summer Snorkel Bliss

Dear Friends, 

It is high summer – hot sunny days, invasive crowds, and glorious warm ocean waters! I am back to regular snorkeling after several months’ hiatus. It is easy to get out of the habit, since it is a bit of a drive to our favorite spots, and we are so juggling the many moving parts of my schedule. But lately we have been feeling an urgent need to reconnect with the activities and mindsets that bring joy to our lives, and that make living in expensive San Diego worthwhile!  

So we rearranged our weekly schedule to open up one day for ocean playtime! Having an additional support person helps immensely, too, because Tara has more time to focus on work while Shay drives me to my other sessions and spends time as my art mentor. This change has already markedly improved the energy Tara and I have for diving into our work and our adventures together!  

I was so excited about snorkeling today that I woke up at 6 am and couldn’t go back to bed! This is also part of my renewed efforts to get in better shape, which is an important example of the power of having my own voice in my health and lifestyle practices. I was so happy to get to the beach, see the gorgeous blue water, and confidently wade out and then spend time gently swimming along the coast. I saw leopard sharks, so many bright Garibaldi, a stingray, and a sea turtle! And all under the silky smooth surface! 

It is incredible that all this is just in our county! And I need to get out and appreciate it more, especially while I don’t need a wetsuit! It is such a gift to be able to enjoy this.  

Your salty friend, 

Danny 

We are us

Dear Friends,

I am so glowing from Motormorphosis! Wow! I want to share a poem I wrote about how it felt to be in such an accepting community in person. This was my first time at a large public event centered on nonspeaking autistic folks, and it was such a space of understanding and comfort and peace to not worry about whether my dysregulation or stimming was disruptive. I could feel Tara also noticed it, and it was a new feeling to her too to not worry about how people would react to me! (She is normally only worried about my safety and people who are rude to me – she can turn into a real Mama Bear if provoked on my behalf!)

It was an unexpected highlight to the weekend, and I now hope that more events and spaces will evolve to be so accepting. Thank you to the amazing team at I-ASC and the amazing community of people who attended!

Your Friend,

Danny


We are us

by Danny Whitty

Among you all

There is a peace

Despite our bodies all so struggling

And it is a new feeling to my heart

New since I first realized I was different

My young self destined for a life

Of stares and shame and shushes

And we all the same in that

And we all so kind to each other

And we all united in accepting ourselves.

Catching up & my blue skies

Dear Friends,

Wow, it seems like it has been a long time since I have posted! I was so drained from an emotionally profound and physically tiring trip. It was so amazing, though, and I am so inspired by it.

I want to catch up with you all about so much, but today I want to focus on my ally, CRP, and wonderful older sister Tara. It was her birthday last week, and I was so glad to celebrate with her. She is my blue skies, and my soulmate, and my mentor, and my ocean and travel adventure guide. She has turned her life sideways for me in the past two or so years, and I am actually at a loss for words to describe her commitment to me. I want to share that she is a brilliant and accomplished person in her own right, a beautiful writer, an impressive researcher, an amazing teacher, and a uniquely compassionate person. I am so lucky to have her in my life!

A big next step to support Spellers like me is more programs and residential communities where spelling is supported through aides trained as CRPs and integrated into meaningful activities for growth and well-being. This would allow us to thrive without being so extremely dependent on our loved ones. It is so difficult to feel that I am holding someone as brilliant as my sister back from her own dreams and her own gifts to the world. She never makes me feel guilty for her commitment to me, and I know she finds it so fulfilling, but I know her dreams are not compatible with being my main support person all of the time. And my dreams are not compatible with relying only on my family.

This is a hard truth to face. I am so appreciative beyond words for all of the families supporting their nonspeaking autistic loved ones, and I hope it gets easier for all of us in the not-too-distant future. I am so excited to be involved in two initiatives to build such communities (Teva Community and The Ohana Consortium), and I am hopeful that our options for fruitful and more autonomous lives will keep blossoming!

So, I want to celebrate the amazing woman who has changed my life, and celebrate all like her! I wish I had better words to describe what she means to me, but as she often kindly reminds me, “it doesn’t have to be perfect to be good.” Happy belated birthday, Tara!

Your Friend,

Danny

The Father Land

Dear Friends,

Greetings from the Emerald Isle! I am so overwhelmed with emotions about this trip to my father’s homeland. It is a gorgeous country with a troubled and rich past. And it is a place of such spiritual depth. It is where my father grew up and spent his youth before setting off for opportunities and adventures abroad. I so wish I could ask him more about this time in his life!

It is also where most of our family lives. We are so isolated from family in the US, and it is a whole new feeling to be surrounded by a plethora of relatives. It is like finding a home that I hadn’t known about before. I first experienced this four years ago when we came here for our dad’s funeral. Now I get to experience it again with a somewhat healed heart. And I love it so much.

But it is also a lot to handle emotionally. I am realizing that this extended home is subject to that same ephemerality as everything else, and some of my older relatives are showing signs of slowing down. Some of the younger generation are leaving for the same reasons that my dad did several decades ago. And I am just passing through and just a bystander to all of this. And it leaves me feeling a bit adrift.

I have been a lot more dysregulated than I generally am when traveling. This is an unpleasant surprise, and I don’t know why I am struggling this trip. But it is another layer of complexity in how I feel here. And I guess it is a learning experience in how to handle dysregulation while traveling.

But I am so thrilled with this trip as a whole. It is amazing to see more of this beautiful country, and beyond amazing to make new memories with my family here. I also got to meet some local Spellers, and that was so inspiring to me in my goal of helping to build the Speller community here is Ireland one day. And I am so feeling the love of my family here, and that also inspires me to be involved with the Speller community here. I will share more photos in the coming days on social media.

Now I am in an adorable coffee shop in Galway. We will drive back to Dublin today and visit my father’s grave. And we will spend more time with family there. I am so grateful we could make this trip happen!

Your Friend,

Danny

A chat with my main CRP and ally: separation, autonomy, and opportunity

Dear Friends,

I hope you are all enjoying your weekend! I am having a lovely day with my family. My sister and main CRP Tara leaves tomorrow for Ireland and will be there for ten days before the rest of us join her. This is the longest we’ve been apart since we gained fluency just over two years ago. It feels so long!

I asked Tara to record our chat about the feelings that arise from this (see below; transcript will be added in a few days).

It was so scary and stressful to think about being without my main way to communicate, and also made me feel so acutely that I can’t leave on adventures as easily as she can, as much as I dream of it. She has been so responsive to my concerns, and she helped me see the opportunities and accept the reality of my situation while remaining optimistic about my future. And she arranged for the rest of my support team to take over key roles while she is gone. And now I feel more empowered to take on this challenge as an opportunity for growth and for strengthening my connections with my other CRPs.

I am so excited to travel to Ireland and see my family there for the first time since my dad’s funeral four years ago. This will be my first time able to communicate with them, and I am so thrilled that I can talk with them now! And I am so looking forward to meeting some Spellers in Dublin. This will be a momentous trip!

I will not be posting much, if at all, until I arrive there. I look forward to sharing my trip with you all!

Your Friend,

Danny

Leo in Bloom: Blooming Again!

Dear Friends,

I am so thrilled that our project Leo in Bloom has been reborn as a platform to feature nonspeaking autistic voices, with a new theme every other month! We just wrapped up our first month in this form, on the theme “Advocating as Nonspeaking Autistics.” It featured contributions from several of my impressive and wonderful Speller peers and friends, as well as guidelines and social media accounts to follow.

You can read my review of this issue here and visit the whole website here!

We will resume in July. I hope you are all having a good start to the week!

Your Friend,

Danny

The universe is learning

Dear Friends,

I wrote this poem yesterday to try to sort through my feelings and swirling thoughts. It helped to share with my friends at Neurolyrical Café this evening. I share them with you now.

Your Friend,

Danny

The universe is learning
by Danny Whitty

I.
What the world is coming to
Coming from
And going to
Will it ever arrive
Anywhere and will
We know?

II.
Are you ready?
Ready for what
And when
And why are we
Needing to be so ready
When there is so much
That we cannot
Possibly
Anticipate?

III.
There are two dogs
Draped on the couch
And across the rug
Snoozing in utter contentment
Contorted in odd poses
And so vulnerable and so dependent
But so trusting all the same.

IV.
Bells ringing with the breeze
The loud wind chimes and
The small bells she brought back from Myanmar,
Made for temples but given to her
By someone she used to love
He hung them so nicely here
A rearrangement of how she had placed them impromptu
On the clothesline
Before our father’s wake.

V.
There is an elementary school down the hill
The traffic of cars to drop off and pick up
Is irritating most days
And the idea of being trapped by a child’s schedule
Horrifies her
And we find children to be loud and so needy
In the abstract
But my heart knows they are treasures
Hope and dreams yet untarnished
So vulnerable and dependent
And what do we do with that?

VI.
Time is so slippery
At least in this direction
And I don’t quite understand it but
It flows in all directions
And so somehow do we
And all we can do is
At once so small
And yet so immense.

Happy Earth Day!

Dear Friends,

Happy Earth Day! I am so eager to share my love and wonder for our amazing planet!

A big part of my journey over the past two years has been getting to know Mother Ocean more deeply. But even before that, I have always found solace in nature. And many of my peers in the Spellerverse do, as well. I am so in awe of the beauty and connections and ephemerality and yet endurance of nature.

And I am in awe of the connection my heart feels to it. I am a part of nature, as are all of you. We cannot save nature if we do not save our humanity. The same systems of thinking and working that most hurt nature hurt us too; commodification, disconnection, and lack of mindfulness.

I am so wanting to elaborate more, but I am so low in energy this week. I am so feeling gratitude for this wonderful world, and the opportunities I have had to get to know it. And gratitude for those working earnestly to save it.

Your Friend,

Danny