Dear Friends, Thank you so very much for your kindness with my last post. I am coming out of it, though still feeling very rundown. But I was able to have a lovely day out with Tara a couple of days ago. I had been feeling so low about missing out on the pre-Christmas spirit,Continue reading “Poem: Our brown bags with colorful tissue”
Tag Archives: actually autistic
Tough Times
Dear Friends, I have been really struggling especially the past weekend. When my dysregulation takes over and kicks my OCD and panic response into high gear, I feel like a monster. That is not an exaggeration. I was truly disruptive in ways that caused distress to my family. I don’t know how many can reallyContinue reading “Tough Times”
My Friendship Wish
Dear Friends, I have been having a tough time since Thanksgiving. I am so trying to figure out why! It seems to happen on the holidays, even though I love them. I am so tired because of it, though thankfully I seem to be calming down. I got to hang out on Zoom with someContinue reading “My Friendship Wish”
SpellX 2022 Video. All Grown Up: Some words from “older” Spellers
Dear Friends, I am so proud to share this extended version of my SpellX video! This was a collaboration with several friends, including new ones. Our words come together to share a bit about the experiences and perspectives of adult Spellers. This is a topic that needs much more discussion and work, and I hopeContinue reading “SpellX 2022 Video. All Grown Up: Some words from “older” Spellers”
In Thanks – a poem
Dear Friends, Happy Thanksgiving to you all! My life is so rich, ever growing more so. Gratitude is infused into my being, and it is a gorgeous and exhilarating way to live. I am having a bit of a tough day, with some anxiety and OCD and grief for my father; holidays bring up soContinue reading “In Thanks – a poem”
Typing Sabbatical
Danny has been taking November to focus on making progress with autonomous typing, i.e. typing on a keyboard on a stand, without a CRP holding the keyboard. This jump in communication mode is highly challenging and energetically taxing, and Danny realized he needed to scale back on other activities and devote more energy to thisContinue reading “Typing Sabbatical”
Boo!
Happy Halloween, Friends! I so love the whimsical and fantastical and spooky spirit of Halloween, as well as the idea of connecting with spirits of our dearly departed. I also love writing Halloween-themed poems each year. This is my 2022 Halloween poem, inspired by my late father, who used to say that he would beContinue reading “Boo!”
Episode: Building Community Through Surfing
Dear Friends, I am so happy to share this new episode, filmed some months ago but still fresh! I loved chatting with John White of Waves4All, the group that I and several Spellers go surfing with. He has built an amazing community for adaptive surfing and it is a highlight of my month to joinContinue reading “Episode: Building Community Through Surfing”
Autumn Sharks
Dear Friends, Today I had an amazing snorkel at the Marine Room with Tara and Shay! It was fantastic. So many leopard sharks! My stamina is improving, and I felt more confident exploring on my own, though I know Tara and Shay were watching out for me. It was my first time snorkeling with Shay,Continue reading “Autumn Sharks”
Caves and cliffs and just us
Dear Friends, Today was another great snorkel! We went out early at La Jolla Cove, to a high tide but gentle waves. It was so gorgeous and vibrant. We saw so many Garibaldi and several sea lions swam by us. But the highlight was swimming around the eastern point to a line of caves andContinue reading “Caves and cliffs and just us”