Dear Friends, I have been pretty good and happy lately, but a bit tired! But I wanted to share this podcast interview with Diana for Beyond Awareness: Disability Awareness That Matters. She has a Speller brother who is also an “older” adult, and they live next door to each other in San Diego. So itContinue reading “Siblings Connecting”
Category Archives: Blog
Another Update
Dear Friends, Today was the orientation for a new program that I am part of: Disability Voices United‘s Self-Advocate Speakers Bureau’s training! I am so excited to learn more about changing systems through public speaking. And I love that a diversity of disabled folks are included. It made me think of those days in specialContinue reading “Another Update”
Gloomy Days but Sunny in my Heart
Dear Friends, It has been far too gloomy and gray in San Diego lately. I am so ready for baking hot summer! But all the same, I have felt so hopeful in my heart. After the last round of dysregulation, I have come back more strong and resilient. And I am so excited for thingsContinue reading “Gloomy Days but Sunny in my Heart”
And it recedes
Dear Friends, As always, and as I knew but had a hard time remembering, the dysregulation storm has passed. The river floods and it recedes. There are tides and seasons. I felt so low, so discouraged, so very frustrated that my hard work to strengthen my regulation seemed in vain. But now I can moreContinue reading “And it recedes”
The River, i.e. Madness
Dear Friends, Whew, I had the worst couple of days! Such intense dysregulation. Wow. My throat is still sore from almost continuous shouting, and my body is so very exhausted. My compulsions were so strong. It was so scary! And so disheartening, too, because I had been so proud of my progress in my regulation.Continue reading “The River, i.e. Madness”
Flowers Once Again
Dear Friends, I want to advise that this is an emotional poem. I realize many of my poems might elicit strong feelings of sadness, so I am going to be more mindful in presenting them. So. This poem. It is about five years since my dad was put on life support after weeks sick withContinue reading “Flowers Once Again”
Antsy
Dear Friends, It has been a little bit! I have been so struggling to sleep lately. It is so weird. My body feels so restless, but also is very calm. Like a quiet storm. It is so unusual, but it has been going on for a week or so now, maybe two weeks. I can’tContinue reading “Antsy”
Carrying on the legacy of Nick D’Amora
Dear Friends, I am so saddened over the loss of Nick D’Amora of CrimsonRise. I never met him but know many of his friends. And I feel like we Spellers have a strong bond despite distances that separate us. We feel each other. He did so much with his time. He changed the world forContinue reading “Carrying on the legacy of Nick D’Amora”
On Independence and Resilience
Dear Friends, I want to share so much today, but for now I will post on the ideas of independence and resilience. I think many of us with autism and apraxia feel that these are far-off if not impossible ideals. After all, we rely on outside help to do so much. And our bodies andContinue reading “On Independence and Resilience”
Spellers in the Spotlight
Dear Friends, Well, by now you have probably heard of the documentary film “Spellers.” I was so happy to watch it at a screening last night in San Diego. Wow! I am so in awe of the Spellers and families and practitioners involved, and grateful to the filmmakers. They did an amazing job communicating whatContinue reading “Spellers in the Spotlight”
Danny With Words 