Chilly Days

Dear Friends,

It feels like autumn here in San Diego. I know people scoff at our seasons, but they are real and meaningful. The quality of light, the chilly dry mornings, the hushed ending of day. It feels calmer. Even with the holidays fast approaching, it feels more still.

I am feeling like I haven’t had much direction this year. It is hard to get a sense of it. I don’t have formal structure in my life, and these past couple of years have filled up with so many activities and goals, so it all feels a bit scattered and cluttered.

At times I feel a bit lost. I am still learning to navigate my new life. I am still limited by my disability. I am still unsure of where I will end up. My dreams are so big, and I am so constrained in what I can do, so I often feel so far from where I hope to be.

That said, I can say that I have done a lot this year. The podcast is a big thing. I wish it had a bigger and more diverse audience, but I am also in awe that hundreds of people listen. I would list off more accomplishments, but that is not the point here. I more want to focus on how I am proud of myself for even just maintaining my social media and my regular activities. That is my new baseline, and it is somehow easy for me to take it for granted these days. But really, that baseline is so much higher than I had access to five years ago. It is huge that my new routine seems so easy that I forget how monumental it seemed just a few years ago.

I think it is natural to forget such things. But it is so heartening to remember them. I am working on that.

I am so grateful to have you all to share these thoughts with. It is the season for contemplation of our harvests this year, a time to reflect on our labor and yields. I am hoping you can all find something encouraging and uplifting in this process.

Your Friend,

Danny

In this reality

Dear Friends,

Well, I guess my prayers were not enough. I am dismayed by the election results. It is so disheartening.

It is a good lesson in facing reality. I wish that more people voted thoughtfully, that more people used critical thinking and examined their biases and assumptions, that more people looked past factions and scapegoats and fictions created to manipulate. I wish that people in this wealthy nation were better cared for by their government. I wish that wealth weren’t able to influence politics so much, and that religion were actually kept separate from government.

Wishes are not reality. And so I am trying to release my clinging to wishes because longing for them and mourning the fact that they are so far from reality is asking for misery.

I wish that my disability were easier to live with. Sadness is justified in that, but what kind of life is that to live in sadness over something that is so far from reality? I allow the sadness and anger to well up sometimes, but I choose to more often recognize where I can focus my energy to make my life better.

Same with this election. Sadness and fear might be warranted, but what can be done with that? I think they can cloud our vision. I don’t begrudge anyone their process, but for me, I opt to be pragmatic. It is clear that my assumptions about how people vote and why are too reductive, because I know that this country is not so populated by the image I have of a Trump supporter. There must be more nuance and diversity of understanding and motivation than I have assumed. So I hope to learn more about this all, and to find a better way to connect across beliefs. I doubt I will ever agree with supporting Trump, but I hope to better familiarize myself with different perspectives and the people who hold them.

This is tough because I am so driven by integrity and I am staunch in my beliefs. I know many advocates see a quest to connect with those whose beliefs seem fundamentally offensive as foolish or enabling. I get it. But in my heart, I feel that connection is needed to process and move forward with the work of building a better future.

I hope you are all taking care.

Your Friend,

Danny

Some Care for Election Day, from our Brave Hearts

Dear Friends,

…is there something special going on today? November 5, 2024? You seem anxious.

Election Day! I have been anxious about this. I know many of you have been, too. So I wanted to share this podcast episode inspired by the strife and conflict that have saturated politics in this country.

This episode of All Our Brave Hearts podcast is on the “longing for care.” I feel that the root of so much anger and hate is the pain that people feel when they don’t get the care and support that they need. That pain can be used to motivate change, but it can also be manipulated into something more toxic. We discuss how care, anger, and politics are intertwined, and how individuals can do more to spread care in the world. Read and/or listen on Substack, or listen on Spotify or Apple Podcasts!

I also will come out and say: I am hoping that Trump does not win. I know some of you will not be happy with me saying this. I have tried to keep such convictions out of my advocacy when I don’t feel that they are directly related to what I advocate for. But as a disabled immigrant and someone who values true democracy and compassion and integrity, I am troubled by how many people support him. It feels relevant to share this.

Take care of yourselves as we wait to find out the results. If you have a nonspeaker in your family, make sure that you keep them in the loop, too, unless they have told you it makes them too anxious.

Your Friend,

Danny

The Best Day

Dear Friends,

Yesterday was one of the best days in my life! I am not exaggerating. I am glowing from it!

First: I took the train on my own for the first time! It was so liberating. I am so proud of this milestone. I am so eager to do it more. This was my first time alone in public, except for when I do beach days while Tara surfs. It felt so freeing to be on my own. I am grateful I was able to do this.

Second: My confidence from the train ride carried over to my surfing. Tara picked me up from the train and brought me to Waves 4 All’s monthly surf day. It was a gorgeous day and I had good speller friends with me there. I also was so proud to share about my train ride with Todd, my surf mentor. And I was able to get my body to stand up more consistently than ever before. I could feel new connections forming in my body as I persisted in standing up, even after the waves had run out of momentum. It felt great to be cheered on and to hang out with good friends Austin and Kade.

Third: I am so absolutely thrilled by this part! We hosted an amazing Halloween party. Wow. It was so good! I directed it, and invited a mix of spellers and nonspellers, and kept it ages 26 and up (with two exceptions for family members of dear friends). I wanted a truly inclusive environment, which is not the same as a segregated event only for disabled folks and their families. And I wanted to have a space for us grown-up spellers to get away from childish activities that often come with events for spellers. It was great to see the house and back patio full of friends having a great time! My mom cooked an impressive feast, and my sisters and some guests brought delicious additions. Tara decorated based on my specifications. It looked great!

It was probably the last event we will host in this home. We need to move by March and are already looking for a new home to rent. I have been sad and stressed about it, but this party raised my spirits and helped me bask in gratitude for having been able to live here and share this beautiful place with friends. It was a magical evening, with good food, spooky music, fun costumes, and friends enjoying carving pumpkins and eating and hanging out. I also had an aura reading booth, and got to dramatically read the auras of guests with the help of my aye-aye assistant. I had the best time.

I am so tired but so happy. What a glorious day! This will cheer me up during tough times for a long time to come.

Your Friend,

Danny

Quotes from Think Inclusive podcast

Dear Friends,

Wow, things have been busy lately! I am working on some exciting schemes and I also have not been sleeping well, so I am not posting as often. But I wanted to share some of my prepared answers for my interview by Tim Villegas for the Think Inclusive podcast episode that was posted in September.

These are points that need to be shared and heard and absorbed. I hope they resonate with you! The episode can be accessed here.

Your Friend,

Danny

Island Getaway

Dear Friends,

I am glowing from the trip we took this week! We usually do one ocean activity each week, often snorkeling or stand-up paddleboarding in La Jolla. This week, though, we did a day trip to Catalina Island. I hadn’t been there since 2009, when our family took one of our few family vacations there. This was inspired by Tara doing her freediving certification there last month. She realized it could be a feasible day trip. And I have been needing a retreat, so it was perfect for that.

So we set off early in the morning. It was a smooth drive to Dana Point. The ferry ride was fantastic. I saw so many dolphins and some sea lions and loads of seabirds. I couldn’t help but yell, “Dolphins!” whenever I spotted one. It was so cool!

The day had been gray, but when we approached the island, the sun shone through. It was a gorgeous day. I couldn’t wait to get in the clear waters! We walked to Lovers’ Cove, where no one else was out. We got changed into our wetsuits and hopped in.

Wow! The water was so beautiful. It was like a wonderland. The kelp was just right there by the shore. There were so many kinds of seaweed all in different colors and shapes. And the fishes! So many just cruising around.  It was spectacular.

After that, we warmed up in the sun, then walked into Avalon town to find lunch. Then we sat on a small beach and rested. I stared into the mesmerizingly clear water and just lost myself in thought. Then we napped. I really needed it, as I have not been sleeping well. It was so revitalizing.

Then I wrote some poetry and read part of an essay. What a dream setting for creativity!

And then it was time to head back. Tara encouraged me to stand outside on the back of the boat to enjoy the fresh ocean air. I didn’t like the wind at first, but then I grew used to it and found the rushing air and water to be thrilling. I loved the movement of it all!

Then we drove home. I felt like I had been transported to a different world for a longer time than just a day trip. It was such a perfect day.

Tara did forget to bring the SD card for her Akaso camera, but did manage some shots on a very old and barely charged camera she had lying around. Someday she’ll get her underwater camera routine down. She had a lot to manage and prepare, so it is understandable. She does so much to bring joy into my life.

This was such a highlight of this year. I am grateful I could do it.

Your Friend,

Danny

A New Goal

Dear Friends,

I am so excited to share a new goal I have for this month! It is to take the local train from near my house to the station near Tara’s apartment on my own. The start and end of this trip are both terminal stations, so it is a bit easier than trying to learn how to get off at a station in between because it won’t be so rushed. I will get a phone so my family can track me and I will practice using it for basic communication about where I am. I am so thrilled about this!

I have been craving more independence lately. It is not my main goal, but even small ways of doing things on my own are so empowering. I am almost in my forties. I am so yearning for dignity and respect as any adult deserves. I am longing to prove to myself that I can do more than most people assume.

Tara and our mom are helping me prepare and practice. I am so appreciating their sincere support, because I know they are nervous about this. They are working to be enthusiastic and optimistic while also practical. They understand how much this means to me.

When I share this goal with people, the common initial reaction is surprise and doubt. But also, that is often followed by encouragement and enthusiasm. The best are the people who don’t hesitate to affirm my goal. They say without any reservations: That is great and you can do it! I love that.

So I will be practicing these train trips this month. I am so proud to be trying this. I know I can do it!

Do you have any goals you are excited about? I would love to hear about them!

Your Friend,

Danny

Answers from my brave heart

Dear Friends,

Well, we skipped a couple of weeks of All Our Brave Hearts! Oops. I have been doing less than usual, and probably needed that. But I am glad to be back with our newest episode! This is another Q & A.

Please submit more questions! I love answering them. This episode is short and sweet. I am preparing some more intensive episodes coming up. I am so loving the great feedback on this podcast!

I am wanting to share some updates, but that can wait for later this week. Happy October to you, and I hope you are all doing well!

Your Friend,

Danny

A Podcast Episode to Check Out

Dear Friends,

I am so glad to share this podcast episode from Think Inclusive Podcast, where Tim interviewed me and Tara. He is involved in efforts to make education more inclusive. I so appreciate him amplifying speller voices, and also promoting All Our Brave Hearts podcast. Please listen if you haven’t already!

You can listen on their website or watch here on YouTube.

I am having a bit of trouble sleeping these days, but thankfully I am not too dysregulated. A lot of my peers have trouble with sleep. I would love more research on this. It is a tough challenge for many of us. But at least for now, I am managing okay. Just not so able to do a lot of what I want to these recent sleepy days. Hoping this week will be better.

Hope you are all enjoying the transition to autumn. It is my favorite time of year!

Your Friend,

Danny

A Trip to Oregon

Dear Friends,

I had the best time in Oregon! Wow it is beautiful there. So lush and green. It is so different from San Diego!

I had an event at Autism Mustang Alliance, along with powerhouse spellers Niko Boskovic, Ethan Nagy, and Diego Peña. Edlyn Peña was the keynote presenter. I was honored to be in such company!

I got to see old and new friends in the audience. And I got to make new animal friends, too! Searmi runs Autism Mustang Alliance and has created a wonderful space for mustangs, donkeys, goats, pigs, chickens, and dogs. I am still aglow from interacting with the horses. Their energy is just amazing. I even got close to a cagey stallion who let me slowly approach. Searmi expertly guided me and taught me how to read his body language. I was so feeling his feelings. It was a special moment.

I loved meeting Searmi and her family, including her speller son Ben. He rocked a “nonspeaking, very verbal” t-shirt part of the time, and it looked great on him! I also just loved being in a crowd of spellers and our allies.

Our time besides the event was fantastic, too. The food in Portland is great and especially exciting for Tara as a vegetarian. We tried Sri Lankan food, a first for me, and also a feast of vegan dim sum. Also decadent pastries. And we walked around so much! I loved our simple neighborhood walks. And we hiked to a gorgeous waterfall. It was like being in a different world. Also, I picked up some books from Powell’s. So much good stuff in a few days.

Thanks again to Searmi and Autism Mustang Alliance! This was a lovely experience that I will fondly remember.

Your Friend,

Danny