Category Archives: Blog

Dear Friends, Wow, I have had so little energy lately! The pain and healing take a lot. It is so draining. But that doesn’t mean that I have been calm. I actually have had tremendously explosive dysregulation. It is what caused this injury in the first place. And it has continued into my recovery. IContinue reading “Out of Control”

Dear Friends, I am coping with my arm, but it is such a drain on my energy. It is a lot of work to heal I guess. Thank you for your continued supportive messages. It was recently the seventh anniversary of my father’s death. It is astounding to me how it has been so long.Continue reading “For my dad”

Dear Friends, Well, an appropriate time to share our next All Our Brave Hearts episode, on the topic of regulation. I am very unhappy and uncomfortable with the broken arm. So these thoughts on regulation are timely, even though we recorded this three weeks ago. Read and/or listen here: https://allourbravehearts.substack.com/p/ep-22-the-work-of-regulation You can also listen onContinue reading “On regulation”

Dear Friends, Well, bad news. I broke my right arm very badly. It hurts so much! Wow. I will have surgery on Saturday. It seems so far away. Fortunately, I am able to spell with my left hand. A newfound skill that I hadn’t know I had, but I am sure glad I do. WhatContinue reading “Oops”

Dear Friends, I am so marveling at the spring blooms and longer days. It is like a wonderful awakening. My mom has made the gardens flourish. I love it! I am also entering a new season. With my new aide and day program, I can spend time away from the family and the house. ItContinue reading “It is spring”

Dear Friends, Happy Mother’s Day! This is not a sufficient way to honor mothers. It is not enough to applaud them with flowers and meals once a year. Mothers are chronically undersupported and underappreciated. Our society treats mothers with such entitlement and neglect of the basic needs that would make their lives easier. I amContinue reading “To My Mother”

Dear Friends, Thank you for your kind concern. It is so appreciated! I love this community. I feel a bit better. Still on edge, but able to rest more. Still prone to sudden outbursts. But less volatile. I am feeling that my body is out of sorts. I wish I could better control how IContinue reading “I am better a bit”

Dear Friends, I am having an awful time. I hate that this happens and that it is still not clear why. It is the bane of my life. I am so full of angry energy. The shouting and slamming things and compulsions are so distressing to me and my family. The dogs are terrified. ThisContinue reading “Under the Weather”

Dear Friends, Tara is back! My heart feels so happy. I really missed her. It feels like sunshine to see her again. This month has been good. My aide and I have made great progress spelling. And I had some fun outings with my little sister. And my mom and I have been making ourContinue reading “Reunited”

Dear Friends, Well, we are back with the All Our Brave Hearts! podcast This episode is a collaboration with Spellers and Allies Advocacy Network at International Association for Spelling as Communication (I-ASC). This is part of our Communication Equity campaign to raise awareness of inequity in access to spelling as a communication method. It isContinue reading “Brave Hearts on Communication Equity”