Category Archives: Blog

Dear Friends, I am having an awful time. I hate that this happens and that it is still not clear why. It is the bane of my life. I am so full of angry energy. The shouting and slamming things and compulsions are so distressing to me and my family. The dogs are terrified. ThisContinue reading “Under the Weather”

Dear Friends, Tara is back! My heart feels so happy. I really missed her. It feels like sunshine to see her again. This month has been good. My aide and I have made great progress spelling. And I had some fun outings with my little sister. And my mom and I have been making ourContinue reading “Reunited”

Dear Friends, Well, we are back with the All Our Brave Hearts! podcast This episode is a collaboration with Spellers and Allies Advocacy Network at International Association for Spelling as Communication (I-ASC). This is part of our Communication Equity campaign to raise awareness of inequity in access to spelling as a communication method. It isContinue reading “Brave Hearts on Communication Equity”

Dear Friends, I am struggling with dysregulation today. It is rough. The worst part is that it is Tara’s last day here before she is gone for a month. I wanted to do so much with her, but I can barely sit to spell this. That is so disappointing. And I will miss her. IContinue reading “April Outlook”

Dear Friends, I had a delightful time yesterday! I presented to an intimate group at La Jolla Riford Library, on my communication journey and the idea of having a brave heart. It was so nice to see a mix of friends, family, new faces, and parents of young nonspeakers among the group. It was soContinue reading “Words to Share”

Dear Friends, It is St. Patrick’s Day, and I am wearing green! I am half Irish, from my dad, and I am proud to be. I love Ireland, for our family there and its spiritual richness and natural beauty. I am grateful to have visited a few times as an adult, and I cherish memoriesContinue reading “Happy St. Patrick’s Day”

Dear Friends, Wow, I am so excited about this coming week! I am glowing. It is a big week! I was not feeling like posting about it, because I was nervous about getting excited and risking disappointment. But I decided to be open to sharing! The main thing is that I will start at aContinue reading “A Big Week Ahead”

Dear Friends, A gorgeous day here in San Diego! I love this place. I want to highlight the Spellers and Allies Advocacy Network, of which I am a member. It is the advocacy branch of the International Association for Spelling as Communication (I-ASC). I have loved being part of this group for the past 4Continue reading “On Advocacy”

Dear Friends, It is almost a month and a half later than we aimed for, but here is the latest issue of Leo In Bloom magazine! We are always so thrilled to share the words of nonspeakers around the world. The theme for this issue is connection. I am including sneak peeks of our piecesContinue reading “Leo in Bloom Again”

Dear Friends, I am so fresh after the first good night of sleep in a while! It makes a difference. This weekend, I was overwhelmed by energy. It was so exhausting. And it looked happy at times, but even that can be dysregulating. One thing that helps is being by the ocean. I was luckyContinue reading “A Bit Carried Away”