Dear Friends,
I am so thankful to you for your warm congratulations on my citizenship. I had a wonderful celebration with family and friends in our new back yard. The view was fantastic and the company even better!
But dysregulation is back at me again. I am staving off the explosive rage and running around, but it is such hard work. I am still stimming loudly and so compulsive. It is so exhausting.
I want you to know that I am almost always working to keep it together. Many people assume that nonspeakers are spoiled or tantrumming or just not aware that we are being disruptive. Let me set this right. I am fully aware that it is disruptive. I am not in any way willfully doing it. It is not an issue of discipline or respect or awareness on my part.
So I need you to know that I am almost always trying to stay regulated. It is a constant and tiring effort.
That is it for today. I needed to write a post to share and to do some purposeful activity to help me stay grounded. That helps in the moment.
Your Friend,
Danny
Danny With Words 
Thank you again for your blog – it helps our family to hear from others who have struggles similar to Tyler’s. Tyler has told us that it helps his body regulate if we increase the cognitive demands and keep his brain busy. So he has said to play books on Audible (he loves dystopian novels), play complicated classical or piano music (altho he said classic rock is his favorite genre), and play podcasts in other languages (I will also tell him to change the language and even subtitles when watching videos) Physical activity also helps – he wants to hike in nature – I just wish we lived closer to trails with trees.
What helps you regulate?
thank you – Judy
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