Category Archives: Blog

Dear Friends, This is a bit scary for me, but I am being brave. I want to share that I am lonely romantically. It is getting me down these days. I have mentioned my hope for romance before. But I have been too shy to say more before. I am so dreaming of a partnerContinue reading “Searching for Love”

Dear Friends, I am so antsy today, despite being calmer than usual lately. It is complicated, but a big part of it is that I have so much to say and I am so limited in my communication speed and depending on support to communicate. It is infinitely better than no communication, but still hasContinue reading “So Much to Say”

Dear Friends, Hi! It has been a while. I had a great time with my mom and little sister. My sister and I can now do creative writing together, which opens up a universe of things we can do together. My mom is now confident in zoom meetings with me, which is a huge stepContinue reading “Emotions are a lot”

Dear Friends, Another week, another episode of our All Our Brave Hearts podcast! This episode is a special and personal one. I wanted to share some of my poetry inspired by the idea of togetherness. Poetry is one of the most powerful ways I can express myself in this new chapter of life with communication.Continue reading “AOBH Episode 6: Sharing some of my poetry”

Dear Friends, Episode 5 of the All Our Brave Hearts podcast is here! In this episode, we discuss some of the language around disability in a more broad way than Episode 2, which focused on the labels “nonspeaking” and “nonverbal.” This is a particularly good episode to listen to if you are not very familiarContinue reading “AOBH Episode 5: Disability is not a dirty word”

Dear Friends, Here is our first Question & Answer episode for the All Our Brave Hearts podcast. I respond to questions following up on our Episode 2 (“nonspeaking” vs “nonverbal” labels), as well a question about interdependence and about what animal I’d choose to transform into. It is a fun episode! You can listen andContinue reading “All Our Brave Hearts Q&A Episode”

Dear Friends, Tara is going on a long trip for her marine conservation consulting work. Seven weeks or so! I am so thrilled for her, but we are both sad about our time apart. It is our longest separation in over four years. I will feel incomplete without her. But my mom and my otherContinue reading “Tara’s Trip”

Dear Friends, Thank you for the great recommendations for diversity training! We have a lot to review. Today, I am happy to share Episode 3 of the All Our Brave Hearts podcast! This is on being in public in my disabled body. I am so absolutely sure you will resonate with this episode. Whether youContinue reading “Episode 3 of All Our Brave Hearts!”

Dear Friends, I am so hoping you can help with this! An advocacy group I am part of is seeking disability-informed diversity training. Communication access is limited for us nonspeaking apraxic folks, but particularly for BIPOC families. Even our group is not very racially representative. So we are needing to develop a diversity campaign, butContinue reading “Seeking disability-informed diversity training”