Dear Friends, I am so saddened over the loss of Nick D’Amora of CrimsonRise. I never met him but know many of his friends. And I feel like we Spellers have a strong bond despite distances that separate us. We feel each other. He did so much with his time. He changed the world forContinue reading “Carrying on the legacy of Nick D’Amora”
Category Archives: Blog
On Independence and Resilience
Dear Friends, I want to share so much today, but for now I will post on the ideas of independence and resilience. I think many of us with autism and apraxia feel that these are far-off if not impossible ideals. After all, we rely on outside help to do so much. And our bodies andContinue reading “On Independence and Resilience”
Spellers in the Spotlight
Dear Friends, Well, by now you have probably heard of the documentary film “Spellers.” I was so happy to watch it at a screening last night in San Diego. Wow! I am so in awe of the Spellers and families and practitioners involved, and grateful to the filmmakers. They did an amazing job communicating whatContinue reading “Spellers in the Spotlight”
Are you the same me as before
Dear Friends, I am so thinking so much about healing! Specifically, healing our inner children. I know I am not a therapist, nor do I have any training in psychology, but I can speak from my own life. And my inner child, Arnold, has been such a teacher to me. He also drives my effortsContinue reading “Are you the same me as before”
Being scary
Dear Friends, I was recently part of a meeting to plan a pool party at a hotel. This was mainly for us Spellers. Someone mentioned a concern about other hotel guests being there. In the moment, I joked: “We can scare them away!” I could sense Tara’s concern about how this statement could be triggeringContinue reading “Being scary”
Out & About
Dear Friends, I had the most fun Friday afternoon and night! I so love being out and about, just like any other adult. I love seeing the scenes and people and action in active, lively places. I am so proud of my going out outfits and my emerging style and my growing confidence that IContinue reading “Out & About”
A Special Day
Dear Friends, It is Tara and my third Fluenciversary today! We started open communication three years ago. Wow! It is hard to believe all that has happened in these years, and hard to grasp all that it has meant. I still have a lot of processing of pre-fluency trauma and it is an ever unfoldingContinue reading “A Special Day”
On a beautiful life
Dear Friends,I have started processing more feelings, and poetry has helped. Here is one I wrote on Tuesday. I am so grateful I can express my words. This is about looking through old photo albums in my uncle’s house in Hiroshima. Thank you to Tara for staying up so late taking photos of them. YourContinue reading “On a beautiful life”
In loving memory of my Papa
Dear Friends, Among all of my feelings from my trip, I also am all full of memories of my Papa as it was his birthday last weekend. The fourth without his physical presence. Wow, it is hard to grasp! I am so glad I was able to publish a book of my cherished poems inspiredContinue reading “In loving memory of my Papa”
Back to a new reality
Dear Friends, Well, it sure has been a while! And it feels like I have travelled and grown more than two weeks or farther than the span of the Pacific! So I am home in a spatial sense, but I feel as if I am somehow in a different place! I am still processing itContinue reading “Back to a new reality”