Dear Friends, As always, and as I knew but had a hard time remembering, the dysregulation storm has passed. The river floods and it recedes. There are tides and seasons. I felt so low, so discouraged, so very frustrated that my hard work to strengthen my regulation seemed in vain. But now I can moreContinue reading “And it recedes”
Category Archives: Blog
The River, i.e. Madness
Dear Friends, Whew, I had the worst couple of days! Such intense dysregulation. Wow. My throat is still sore from almost continuous shouting, and my body is so very exhausted. My compulsions were so strong. It was so scary! And so disheartening, too, because I had been so proud of my progress in my regulation.Continue reading “The River, i.e. Madness”
Flowers Once Again
Dear Friends, I want to advise that this is an emotional poem. I realize many of my poems might elicit strong feelings of sadness, so I am going to be more mindful in presenting them. So. This poem. It is about five years since my dad was put on life support after weeks sick withContinue reading “Flowers Once Again”
Antsy
Dear Friends, It has been a little bit! I have been so struggling to sleep lately. It is so weird. My body feels so restless, but also is very calm. Like a quiet storm. It is so unusual, but it has been going on for a week or so now, maybe two weeks. I can’tContinue reading “Antsy”
Carrying on the legacy of Nick D’Amora
Dear Friends, I am so saddened over the loss of Nick D’Amora of CrimsonRise. I never met him but know many of his friends. And I feel like we Spellers have a strong bond despite distances that separate us. We feel each other. He did so much with his time. He changed the world forContinue reading “Carrying on the legacy of Nick D’Amora”
On Independence and Resilience
Dear Friends, I want to share so much today, but for now I will post on the ideas of independence and resilience. I think many of us with autism and apraxia feel that these are far-off if not impossible ideals. After all, we rely on outside help to do so much. And our bodies andContinue reading “On Independence and Resilience”
Spellers in the Spotlight
Dear Friends, Well, by now you have probably heard of the documentary film “Spellers.” I was so happy to watch it at a screening last night in San Diego. Wow! I am so in awe of the Spellers and families and practitioners involved, and grateful to the filmmakers. They did an amazing job communicating whatContinue reading “Spellers in the Spotlight”
Are you the same me as before
Dear Friends, I am so thinking so much about healing! Specifically, healing our inner children. I know I am not a therapist, nor do I have any training in psychology, but I can speak from my own life. And my inner child, Arnold, has been such a teacher to me. He also drives my effortsContinue reading “Are you the same me as before”
Being scary
Dear Friends, I was recently part of a meeting to plan a pool party at a hotel. This was mainly for us Spellers. Someone mentioned a concern about other hotel guests being there. In the moment, I joked: “We can scare them away!” I could sense Tara’s concern about how this statement could be triggeringContinue reading “Being scary”
Out & About
Dear Friends, I had the most fun Friday afternoon and night! I so love being out and about, just like any other adult. I love seeing the scenes and people and action in active, lively places. I am so proud of my going out outfits and my emerging style and my growing confidence that IContinue reading “Out & About”
Danny With Words 