Dear Friends, Well, I am through another “off” spell. It wasn’t awful in that I wasn’t outwardly dysregulated, but it was still tough. I was calmly restless, which is as strange as it sounds! I was so unable to stay seated or lying down. So sleep was almost impossible. I was also so compulsive, butContinue reading “Relief”
Category Archives: Blog
Hi amid haziness
Dear Friends, Wow it has been a while! I have been so overwhelmed with commitments and goals, and Tara has been hustling hard for her work plus all that she somehow manages to do, and I have been feeling out of it for a few days. I still am out of it, but wanted toContinue reading “Hi amid haziness”
About this Father’s Day
Dear Friends, I hope you all had a good Sunday! I wish a belated Happy Father’s Day to all the dads and dad figures out there. I also wish those without a present father figure a lot of peace and solace if this was a painful day. This was the fifth one since my dadContinue reading “About this Father’s Day”
Siblings Connecting
Dear Friends, I have been pretty good and happy lately, but a bit tired! But I wanted to share this podcast interview with Diana for Beyond Awareness: Disability Awareness That Matters. She has a Speller brother who is also an “older” adult, and they live next door to each other in San Diego. So itContinue reading “Siblings Connecting”
Another Update
Dear Friends, Today was the orientation for a new program that I am part of: Disability Voices United‘s Self-Advocate Speakers Bureau’s training! I am so excited to learn more about changing systems through public speaking. And I love that a diversity of disabled folks are included. It made me think of those days in specialContinue reading “Another Update”
Gloomy Days but Sunny in my Heart
Dear Friends, It has been far too gloomy and gray in San Diego lately. I am so ready for baking hot summer! But all the same, I have felt so hopeful in my heart. After the last round of dysregulation, I have come back more strong and resilient. And I am so excited for thingsContinue reading “Gloomy Days but Sunny in my Heart”
And it recedes
Dear Friends, As always, and as I knew but had a hard time remembering, the dysregulation storm has passed. The river floods and it recedes. There are tides and seasons. I felt so low, so discouraged, so very frustrated that my hard work to strengthen my regulation seemed in vain. But now I can moreContinue reading “And it recedes”
The River, i.e. Madness
Dear Friends, Whew, I had the worst couple of days! Such intense dysregulation. Wow. My throat is still sore from almost continuous shouting, and my body is so very exhausted. My compulsions were so strong. It was so scary! And so disheartening, too, because I had been so proud of my progress in my regulation.Continue reading “The River, i.e. Madness”
Flowers Once Again
Dear Friends, I want to advise that this is an emotional poem. I realize many of my poems might elicit strong feelings of sadness, so I am going to be more mindful in presenting them. So. This poem. It is about five years since my dad was put on life support after weeks sick withContinue reading “Flowers Once Again”
Antsy
Dear Friends, It has been a little bit! I have been so struggling to sleep lately. It is so weird. My body feels so restless, but also is very calm. Like a quiet storm. It is so unusual, but it has been going on for a week or so now, maybe two weeks. I can’tContinue reading “Antsy”
Danny With Words 