Category Archives: Blog

Dear Friends, I am once again having a tough time! Geez… it has been so relentless this year. Not a lot of intense or agitated dysregulation, but an awful lot of compulsive restlessness. It is better than being super loud or aggressive. But it is still discouraging and exhausting. This time has been so lowContinue reading “Again and Again”

Dear Friends, I am so grateful for your kind birthday wishes, and so happy after a fantastic birthday gathering last night! Thank you! Tomorrow, Tara goes on a much deserved vacation. She has been working so hard this year, and is so hard on herself. I guess it is an oldest sister thing, plus herContinue reading “Another Trial of Autonomy”

Dear Friends, Wow, you are an amazing community! I feel so loved from your kind comments. It really helped me! I am so full of things to share from Motormorphosis. I can’t think of how to start! It was so full of wonderful conversations, fascinating presentations, and loving community. There were so many important andContinue reading “All So Happy”

Dear Friends, Well, the rest of Motormorphosis was amazing! I will post more in the coming days. But today, I need to share that I had a panic attack on the plane before takeoff on the way home. It was bad. I freaked out and ran from the cockpit almost back to the gate, pushingContinue reading “A Tough Trip Home”

Dear Friends, Whew! An amazing and thrilling and fantastic and wonderful and ecstatic experience Motormorphosis has been so far, and there still is one more day to go! My heart is so very full of love and joy. What an astoundingly inclusive and vibrant community we have here. I can’t yet give a summary ofContinue reading “Motormorphosis Overjoy, Overwhelm, Overload”

Dear Friends, So, I am still getting calibrated after a tough span, but I am so thrilled to be heading to Motormorphosis tomorrow! I still need to pack, but I wanted to post here first. I am so hoping to meet many of you and to see familiar faces again too. We are so absolutelyContinue reading “Motormorphosis and new merch!”

Hi Friends of Danny! Tara here. After a couple of days of calm, Danny is once again having a bit of a tough time, this time with more active dysregulation and, again, very little sleep. It’s so hard to see him have to struggle for days and days. Our mom is, as ever, tirelessly (well,Continue reading “Update + Motormorphosis!”

Dear Friends, Well. I thought I was through a rough patch, but that was a false glimmer of hope. It was another several days of restless wandering and very little sleep. But now I have felt more grounded for a few days, so I will tempt fate and declare that I am feeling good again!Continue reading “Hi again!”

Dear Friends, Well, I am through another “off” spell. It wasn’t awful in that I wasn’t outwardly dysregulated, but it was still tough. I was calmly restless, which is as strange as it sounds! I was so unable to stay seated or lying down. So sleep was almost impossible. I was also so compulsive, butContinue reading “Relief”