My Friendship Wish

Dear Friends, I have been having a tough time since Thanksgiving. I am so trying to figure out why! It seems to happen on the holidays, even though I love them. I am so tired because of it, though thankfully I seem to be calming down. I got to hang out on Zoom with someContinue reading “My Friendship Wish”

SpellX 2022 Video. All Grown Up: Some words from “older” Spellers

Dear Friends, I am so proud to share this extended version of my SpellX video! This was a collaboration with several friends, including new ones. Our words come together to share a bit about the experiences and perspectives of adult Spellers. This is a topic that needs much more discussion and work, and I hopeContinue reading “SpellX 2022 Video. All Grown Up: Some words from “older” Spellers”

Typing Sabbatical

Danny has been taking November to focus on making progress with autonomous typing, i.e. typing on a keyboard on a stand, without a CRP holding the keyboard. This jump in communication mode is highly challenging and energetically taxing, and Danny realized he needed to scale back on other activities and devote more energy to thisContinue reading “Typing Sabbatical”

Seen and heard and loved

Dear Friends, My goodness, I am so touched by how many have liked and commented on and messaged about and shared my last post on Instagram and Facebook! Over 650 on Instagram. And now over 2000 followers on Instagram and 1500+ on Facebook. Wow. I am so amazed that you care about what I haveContinue reading “Seen and heard and loved”

Under the Weather

Dear Friends, Wow, am I ever feeling run down. I have been pretty low in energy the past couple of weeks, and a busy couple of days at the end of last week really drained me. It is so frustrating to not have more resilience in my body, and tough to understand how I amContinue reading “Under the Weather”

On Contentment

Dear Friends, During therapy today, my amazing therapist and I were discussing contentment and the tendency for trauma to leave a legacy of hypervigilance and anxiety. I have been working so hard to manage these, so so so hard, and making progress and growing more resilient. At one point, I realized: it is so muchContinue reading “On Contentment”

2 Years Ago: A soul illuminated by a class

Dear Friends, Two years ago, I wrote my first real class assignment! It was for Modern & Contemporary American Poetry (ModPo), a course on Coursera taught by U Penn. It so lit up my life, and opened up my world to the power and art of poetry. The professor, Al Filreis, was so welcoming ofContinue reading “2 Years Ago: A soul illuminated by a class”

Catching up & my blue skies

Dear Friends, Wow, it seems like it has been a long time since I have posted! I was so drained from an emotionally profound and physically tiring trip. It was so amazing, though, and I am so inspired by it. I want to catch up with you all about so much, but today I wantContinue reading “Catching up & my blue skies”

The Father Land

Dear Friends, Greetings from the Emerald Isle! I am so overwhelmed with emotions about this trip to my father’s homeland. It is a gorgeous country with a troubled and rich past. And it is a place of such spiritual depth. It is where my father grew up and spent his youth before setting off forContinue reading “The Father Land”

A chat with my main CRP and ally: separation, autonomy, and opportunity

Dear Friends, I hope you are all enjoying your weekend! I am having a lovely day with my family. My sister and main CRP Tara leaves tomorrow for Ireland and will be there for ten days before the rest of us join her. This is the longest we’ve been apart since we gained fluency justContinue reading “A chat with my main CRP and ally: separation, autonomy, and opportunity”